Well what a few days it's been.
Josh still has all three drains in, the left and middle could come out but his INR has been to high so fingers crossed for tomorrow!
Dr Dhillon has been through all his previous echo's and the right ventricle has always had this problem but was not apparent until now.
They are concerned but want to concentrate on getting him better at the moment.
His appetite has been really bad, vomiting alot and now has diarrhoea (poor little man is going through it!)
They have got the dietician involved as he has lost a lot if weight so he's now on special drinks full of calories!!
He had a fun time yesterday with the play specialist( and mummy and daddy!!)we did syringe painting! It was great fun and to see him smile was fab.
The plan of action next week will be catheter sometime next week and hopefully sort out any warfarin issues.
On Tuesday he had teachers from
School come and visit him. It really cheered him up and he was very happy with the lovely card all his friends made him and the wonderful gifts that they sent. Thank you to all the children in reception, Joshua misses you all (especially Alfie!)thank you to all the staff at our ladys and also at St Josephs the support you have given us has been fantastic and we really appreciate in all you have done.
The support we have received from some people has been amazing and we can't thank you enough. Lewis and Vicky thank you for raising the money for his INR machine we can't thank you enough. It will make our lives so much easier. Any money raised after the cost of the machine will be going to Birmingham Children's heart appeal as this is so close to out heart, if it wasn't for the expert care Josh has received he would not be with us now, we owe everything to the whole cardiac team(especially the surgeons!).
Will update again Monday when we will have more of an idea what's going on.

- Sent from iPhone.