It's been an eventful day today, on the dr's round they told us that one of the blood tests they did yesterday have come back high( it was one for infection!) hopefully it will be due to the drains being in such a Long time. They decided to take out His last drain today. It took 2 lots of midazolam to work, this time he didn't sleep just talked alot and giggled, to see the drain taken out this time was just as awful or even more so this time. He kept asking me to make them stop hurting him! It broke my heart. Thankfully he can't remember anything.
He was much brighter this evening( still very high on midazolam!!) it's funny to see a 5 year old act as if they've had a good beer session!!! His appetite has picked up today as well.
Hopefully his bowels will start having a good clear out and he can start putting loads of weight back on, he was weighed again today and he has lost 2kilo's, he looks very frail and its hard to see him Like it.
This is the first picture without drains with his big sister sat on the floor playing.


- Sent from iPhone.