Yesterday we had a reasonable day, Josh was still very sleepy. He had his pacing wires removed(yippee) he still needed some oxygen support(this is not unusual for him!!)once they did the echo we were told he had a problem in the right ventricle, where the blood passes through the 2 muscles there seems to be an obstruction, they are investigating what it is and hopefully we should find out soon. His renal function is improving which is fantastic news( his kidneys are repairing themselves).
He had a really unsettled night bless him, he's so constipated he's in pain, we have tried everything.

We had a lovely visit from friends of ours who's little boy is having his fontan soon, thanks Linz for the goodies( yummy!!) also Josh loved His presents.
He was a lucky little man with the cards and presents received today, thanks Steph and Ali.

Saturday- wow what a difference, he went for a little walk(with his trolley!) he was so brave:)
CVP line removed:))) renal function improving :)))) he is so much more alert, he had a lovely visit from his bestest friend Alfie, thanks Gemma and Ade for bringing the boys and for the lovely presents,Josh was rather fed up today but if I had to go through what he is, I would be the same. We are so proud of what he's achieved in the past few days (years!) heart kids are amazing.

Some people really don't understand the severity of Joshua's condition(ignorant if you ask me!!) because he looks so well and not ill, what they forget is they dont have to have major heart surgery to stay alive and once they've had all 3 major open heart surgery they really are on borrowed time, the only back up plan left is heart transplant(still not guaranteed)
Yes Josh got through 2 major ops when he was first born ( touch and go most of the time and my god he had to fight) didn't give us the guarantee for this one, as for not being worried about him just shows how
uncaring they are and that they never understood his condition( or wanted to!!)
Life at the minute for us is a rollercoaster,he's going to have good days and bad, when you think things are going well something else will happens, the only time we will start relaxing and thinking he's out of the woods is the day he gets discharged, childen who have this op are unpredictable( coming from a dr's mouth might add!) never trust them until there out the door.
Rant over!!!

We would like to thank everyone for all the wonderful messages either on facebook or by txt. The support has been amazing. Thanks to everyone who had visited it had cheered Josh up.

Well going to try and get some sleep but the ward is rather noisy!! Ear plugs needed me thinks!!

Good night all.xx
- Sent from iPhone.