We have been consented tonight by Mr Tim Jones, he will also be doing Joshua's op. They are planning on doing it first on the list but because theatres have an audit morning it won't start till around 11ish.
He has Been a very brave little super star today, his cannula tissued this morning and also this evening and it's so painful he was sobbing.he had a lovely special pink bath, both last night, this morning and also tonight, I would say he's defiantly surgically clean!!
I'm lying next to him whilst he's sleeping and just thinking I could just run away with him, if only I could have the surgery for him, it's heart breaking to see them go through so much and not be able to stop all the bad things happen, it's horrid when every decision is taken out of your hands when it comes to your own child and to be separated from your other children and husband. Being in hospital makes you appreciate how precious life actually is and what's really important in life and thing for sure.. I love my two so very much, they are my world, they are the reason I wake every morning.
I love you Meg you are being such a brave girl, I know how hard it is for you sweetheart and I can't wait to see you tomorrow.I am so very proud of how grown up you are and how well you deal with everything.x
Josh- you are an inspiration to many, your such a brave little boy, I am so sorry that we have had to put you through all if this but it's worth it, mummy wishes I could do it all for you, I will always be at your side every step if your life.we are so very proud of everything you've had to deal with. Our true super hero.
Thank you for all the wonderful messages, need lots of prayers and positive vibes for tomorrow please.
Goodnight, sleep tight and don't let the bed bugs bite!!
- Sent from iPhone.
Location:Cancelled again today
