Oops have been rather busy since Josh came home and haven't had time to update blog..sorry!
Well firstly his post op went well, sats around 88-93% which is fab! Heart function good slight tricuspid regurgitation and 2/6 systolic murmur on the eternal edge. All meds stayed the same diuretics down to once a day. He has been a real star, his INR levels are really stable and have now gone from weekly, fortnightly to every three weeks. He is going again in Friday so really hope he has remained stable.
We are waiting for another cardiac out patients appointment which should be at the end of April.. Eek. Regardless of how many times you go it never gets any easier and still terrifies me, you are never sure of what they are going to find or say! I don't think it will ever be easy. I think now that he's had the fontan it's Slightly harder because you know theres nothing else they can do, it very scary!!.
We are still not back at home:( it has been 13 weeks since it happened. However the kitchen has been ordered and we should be back home in the next 4 weeks(I hope).
It's not to long know till we take are much needed holiday, and I really can't wait to lie on the beech with the sun blazing sipping a nice cold drink. Just what the doctor ordered!!
I first to say Josh was back to school 6 weeks post op, he did a week of half days and then full time since. He has coped so well and we are all very proud of him. Way to go my little hero. We love you both so very much.
Will update After clinic. Good bye for now.x
- Sent from iPhone
