Where to start! So much has happened over the last few months, Megan's first communion was lovely and we all had a wonderful day, she looked stunning and we are all very proud of her.
Joshua has a few Cardiac appointments since June. We went to see Dr Dhillon on the 5th October, he is stable however his oxygen saturations are starting to dwindle and so are his energy levels, his heart function is good and they have also found Aortic stenosis and a few other minor problems! So Going to Conference on the 3rd November and should be on the list for Fontan completion EEK!!!
We had a wonderful summer holiday despite the weather, we had 2 weeks down in Sennan Cove.Visited Lands End which was just stunning.will post pictures!
Joshua has started school since then and yes i am very lost without him, miss them both so much when there at school and 3o'clock cant come quick enough. he had a wonderful 5th birthday party with his best friend Alfie. The magician was great and all the kids seemed to have a wonderful time. He was a very lucky boy and got lots of wonderful presents.
We have been out again in the caravan this time with Grandma and Papa and what a laugh we had! Ate lots laughed alot and played lots of silly games.
Had the dreaded phone call from Mr Brawns secretary (Joshua's cardiac surgeon)on Monday, what a shock! Josh went on the list last Wednesday for his Fontan, we were asked if we could go in on Monday and have op on Tuesday, obviously i said no, not enough notice! plus we go to Disneyland Paris in 2 weeks!
He is however on list for end of December so yes we are going to see in the New Year at BCH!
We are all feeling the stress and strain of the dreaded surgery but then I can't wait to see my little boy PINK!!! and to be bale to see him run around with his friends will just be amazing and worth it all!.
Megan however is struggling with the whole hospital thing and is worried he won't come home, what do you say to an 8 year, i can't lie and have always been as truthful as possible with her.The schools have both been a great support to us all especially Meg, she is such a bright,caring beautifully natured little girl it's worrying to see her so upset.It breaks my heart as a mum not to be able to promise her that everything will be ok as im not sure myself, we can only pray and hope he will strong enough to get through this op (im sure he will as he's on hell of a little fighter!)Joshua is the one who does not seem to bothered about the fourth coming surgery and still enjoying life to the full and would not have it any other way.
We are going to see Mr Brawn on friday (12th November) to discuss the fontan.
Will post whats been discussed over the weekend.
We are going to mass tomorrow as my little man is doing the offertory, will try and hold back the tears(im an emotional wreck at the moment!!)
Thats all for now.x
